Ce faci când tratamentul care ți-a redat speranța nu mai este disponibil? Poveștile pacienților cu cardiomiopatie hipertrofică: „Intri într-un fel de liniște care te apasă”

Patients with obstructive hypertrophic cardiomyopathy face significant challenges in daily life due to their condition. Many discover their diagnosis only after symptoms appear, and access to innovative treatments remains limited in Romania. Some patients who benefited from these therapies now fear losing access due to halted donation programs, leading to uncertainty and legal battles for treatment continuation. Personal stories highlight the emotional and physical toll of the disease, as individuals struggle with worsening symptoms and the search for effective medical solutions.