„Pielea i se rupea la orice atingere”. Mărturia cutremurătoare a unei mame din Brașov care luptă pentru fiica ei, prizonieră într-o boală rară • Știri Brașov Biz Brasov

A mother from Brașov shares her daughter's painful journey with Ehlers-Danlos syndrome, highlighting the challenges of diagnosis and the impact of a rare disease. Despite a healthy birth, the child faced severe health issues, including fragile skin and frequent injuries. The mother recounts the difficulties in obtaining a proper diagnosis, which came only after years of medical visits and genetic testing. The story emphasizes the importance of recognizing serious health signs during pregnancy and the need for better support for families dealing with rare diseases.